I honestly can't imagine what these parents are going through.
I don't even know if I want to have children someday but after reading this blog word for word, I know now that I'd want to be tested to see if I'm a carrier for SMA.
Don't know what that is?
Check this out: http://averycan.blogspot.com/ and read about Avery and all she did with the little time she had.

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